Preface vii
Contributors ix
Part I Impact of the Disease to the Individual and Family 1
Chapter 1 Chronicity 3
Introduction 3
Impact of Chronic Illness 5
Interventions 10
Summary 16
Chapter 2 The Illness Experience 19
Introduction 19
Impact of Chronic Illness on the Patient and Family 20
Interventions 29
Outcomes 33
Chapter 3 Psychosocial Adjustment 39
Introduction 39
Impact 41
Interventions 44
Outcomes 51
Chapter 4 Social Isolation 57
Introduction 57
Interventions 69
Future Trajectory 74
Chapter 5 Spirituality 81
Introduction 81
Issues 89
Spiritual Assessment 90
Spirituality Measures and Tools 92
Nursing Spiritual Interventions 93
Nursing Education in Spiritual Care 95
Spirituality and Research 96
Outcomes 99
Chapter 6 Uncertainty 107
Introduction 107
Impact 110
Interventions for Managing Uncertainty 117
Outcomes 124
Chapter 7 Quality of Life 129
Introduction 129
Interventions 141
Outcomes 153
Chapter 8 Adherence 159
Introduction 159
Adherence and Chronic Illness 160
Interventions to Enhance Adherence Behavior 176
Outcomes 182
Acknowledgment 183
Chapter 9 Family Caregiving 191
Introduction 191
Problems and issues 198
Interventions 207
Outcomes 217
Chapter 10 Intimacy 227
Introduction 227
Issues in Intimacy and Chronic Illness 229
Interventions 234
Outcomes 238
Chapter 11 Powerlessness 243
Introduction 243
Problems and Issues Associated with Powerlessness 249
Interventions 256
Outcomes 263
Chapter 12 Loss 271
Introduction 271
Issues 273
Responses to Loss: Patients, Families, and Healthcare Professionals 279
Outcomes 282
Chapter 13 Culture and Diversity 287
Introduction 287
Impact 294
Interventions 298
Outcomes 306
Chapter 14 Self-Management 311
Introduction 311
The Meaning of Self-Management 317
Nursing Interventions 320
Outcomes 324
Summary 326
Acknowledgment 328
Part II Impact of the System 333
Chapter 15 Client and Family Education 335
Introduction 335
Influences on Teaching and Learning 343
Educational Interventions for the Client and Family 353
Outcomes 357
Chapter 16 Health Promotion 365
Introduction 365
Issues and Impact 368
Interventions 379
Outcomes 384
Chapter 17 The Advanced Practice Registered Nurse in Chronic Illness Care 391
Introduction 391
Primary Care 392
Summary 406
Contributions of APRNs in Chronic Illness Care 406
Improving APRN Delivered Primary Care for Patients with Chronic Illnesses 410
Conclusions 412
Chapter 18 Complementary and Integrative Health 423
Introduction 423
Impact 426
Issues 432
Interventions 435
Outcomes 437
Chapter 19 Models of Care 443
Introduction 443
Impact 444
Interventions 445
Outcomes 462
Chapter 20 Home Health Care 469
Introduction 469
Interventions for Home Care 476
Outcomes and Quality Management 483
Chapter 21 Long-Term Care 491
Introduction 491
Problems and Issues in LTC 498
Interventions 508
Outcomes 516
Chapter 22 Palliative Care 525
Introduction 525
Issues and Barriers to Palliative Care 530
Interventions 532
Outcomes 539
Acknowledgment 541
Chapter 23 Health Policy 547
Introduction 547
Key Issues 548
Interventions: Engaging in Health Policy Discussions 555
Outcomes 558
Chapter 24 Rehabilitation 561
Introduction 561
Rehabilitation Issues and Challenges 574
Interventions 578
Outcome Measurement and Performance Improvement 588
Index 595